About the Foundation


The mission of the Pediatric IBD Foundation is to improve the lives of children with Crohn’s disease and ulcerative colitis through advocacy and education.


The Foundation is currently developing a much needed and groundbreaking public safety registry for medicines used to treat children with IBD. The Foundation leads an esteemed group of public and private pediatric IBD stakeholders. This group includes decision makers from government agencies, the pharmaceutical industry, the scientific community and leading healthcare providers. Read more about the Children’s REgistry for the Advancement of ThErapeutics , or CREATE registry here.


The Foundation believes that providing cutting edge, trusted education to both physicians and patients is imperative to improving care of children with IBD.

Physician education projects have included a highly acclaimed, online Continuing Medical Education disease-specific program developed and hosted by the Foundation. In addition, the Foundation currently emails a weekly roundup of the most current pediatric IBD related news, recently published medical literature and innovative research links.

Patient education has been at the forefront of the Foundation’s activities since it’s inception. The pedsibd.org website was one of the Foundation’s first completed projects and the first of it’s kind to offer disease specific information directly related to pediatric care. This comprehensive patient/parent education website is particularly sensitive to the fact that a pediatric illness impacts the entire family and not the patient only. To this end, the Foundation’s website addresses this important issue by including information, tools and resources for both parents and patients.

In the winter of 2020, in response to higher traffic rates and more mobile users, the pedsibd.org underwent a complete redesign. The updated site features a more user-friendly interface providing quicker and easier access to content. In addition, the new site is very responsive to users’ mobile access needs. The website continues to be a major and ongoing focus of the Foundation’s mission.


The Foundation is a registered 501c3 and seeks support from government agencies, for-profit corporations, charitable foundations, commercial sponsors, individual donors, volunteers and most importantly, the families and friends of children living with Crohn’s disease and ulcerative colitis.

Please consider GIVING as a Foundation partner and help us continue to make meaningful progress in improving the lives of children and families living with IBD.

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