Privacy Policy

The Pediatric Inflammatory Bowel Disease Consortium, Inc. (“PediIBDC”) is dedicated to protecting the privacy of visitors to our website. It has adopted the following Privacy Policy governing its website.

Our website automatically collects information about the IP address, browser type, domain name, date and time of access and general location (country of access) of all visitors. Personal information is not collected on the PediIBDC website, except in instances where users voluntarily provide the PediIBDC with such information.

You provide the PediIBDC with personal information on a voluntary basis when you choose to subscribe to our e-newsletter, [register with us through the Educational Materials form, complete a Volunteer Network or Patient Registry form, make a donation, or register for PediIBDC conferences]. Through these mechanisms, we may collect information such as [your credit card number when you make a financial transaction and] personal demographics, like your name, address, phone number, email address, etc.

The PediIBDC respects the personal privacy of the visitors to our website. We believe keeping your information private and secure is very important. The PediIBDC undertakes to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the website and clinical sites are located.

In general, the PediIBDC gathers information about users as a group, such as the pages visited and services used most frequently. This information is anonymous and the PediIBDC only uses such data in the aggregate to analyze site traffic for general promotional purposes, and for making decisions about the future strategy and direction of the website. The PediIBDC has a variety of reasons to study user demographics, interests and behavior based on the information volunteered, including to better identify information needs of children with inflammatory bowel diseases and to improve the services offered by the PediIBDC. Users may opt out of any such secondary use of personal information by calling the PediIBDC at 617.7.9696.

The aggregated information may also be shared with third parties to promote PediIBDC services and the website, or to add to general knowledge concerning the need for pediatric inflammatory bowel disease education and treatment services.

This website uses cookies. When you register with PediIBDC online, a cookie (a small text file) is placed on your computer by our system. The data contains a unique identification number assigned by our system that recognizes your computer when you come to our website, but does not recognize you as an individual. These cookies remain on your computer and are automatically retrieved when you return to our website at a later time. We use cookies to remind us to send you information you have requested and to deliver to you, a more personalized service. You may choose to set the properties of your computer so that you are alerted each time a cookie is being stored or you may choose to prohibit the storage of cookies all together. In addition, you may delete cookies that have already been stored on your computer. If you do prohibit the storage of cookies, you should understand you will need to re-enter your email address and other information each time you access any portion of our website which requires identifying information.

The PediIBDC uses PGP encryption technology to protect your information and this information is always kept strictly confidential. If you have shared with us your credit card information to make a purchase or a donation, or other personal and/or medical information through the Volunteer Network, Patient Registry or Conference Registration forms, your information is stored on a secure server via SSL and is protected by firewalls. All personal information is stored on a secure server via SSL and is protected by firewalls. Only a limited number of the PediIBDC staff has access to secure confidential data.

The PediIBDC will not share with third parties any personal information without your consent. We do not sell or rent your personal information.
The PediIBDC reserves the right to disclose or access account information when it has a good-faith belief that such disclosure is necessary for compliance with any law.

We will not deliver targeted advertisements from others to you. We provide no mechanism for an advertiser to reach you, unless you sign up directly with an advertiser or outside vendor.

The PediIBDC sometimes contracts with outside vendors and business partners to fulfill customer services and hosting services for the website. When we do, we endeavor to work only with partners who adhere to a compatible privacy policy and/or to enter into confidentiality and non-disclosure agreements with vendors stating they will hold information received through our site confidential and will not sell or share user information to any third party or use the information for their own personal use.

The PediIBDC may disclose information to law enforcement and other authorities in the rare case when there is reason to believe that disclosure is necessary to identify, contact or bring legal action against someone who may be causing injury to or interference with (either intentionally or unintentionally) the PediIBDC’s rights or property, other users or anyone else that could be harmed by such activities.

If you have any additional questions about your privacy on the PediIBDC website, or if you believe that your privacy may have been violated by the PediIBDC, please contact the Board of Directors at

Please be aware the PediIBDC privacy policy is continuously reviewed. The PediIBDC may change this Privacy Policy at any time by posting the change on its website, and it is your responsibility to be aware of any changes. Your use of the PediIBDC website constitutes acceptance of the terms of this Privacy Policy.

We welcome your thoughts, which you may send to

Last revised February 19, 2009.

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